Two articles addressing breast cancer were published today in the popular media: Angelina Jolie’s essay in Time magazine (where she now serves as a contributing writer) and Shabnam Mahmood’s article on BBC.com. The two report from disparate perspectives, but both convey a similar message.
Jolie’s essay discusses the many positive advancements in breast cancer research and increased efforts to provide access to detection and treatment. She then acknowledges that “while [the] stories” she presents of new findings and survival rates “should give us hope, we still have a long way to go.” She catalogues a plethora of other ills facing women–not just the physical manifestation of breast cancer, but also factors like women’s rates of depression brought on by a host of cultural and institutional realities. Among them, according to the World Health Organization, are “discrimination, overwork, poverty, malnutrition, low social status and unremitting responsibility for the care of others.”
While I am often skeptical of insights offered by individuals who enjoy extreme privilege and access to the best care the world has to offer, I was in total agreement with Jolie’s point that as human beings, we must remember that “it should not take someone getting sick to realize that caring for them and not harming them is necessary.” Simply put, too many women, both those living in our own backyards (like Edwina and women like her who face cancer while struggling to survive in homeless communities) and those across the globe, suffer in unimaginable ways physically and mentally every single day. It doesn’t take a cancer diagnosis to ruin their lives, or for them to experience unrelenting fear.
They are already in peril.
Jolie encourages readers to “[h]elp young women know their value. Help keep women you know safe. And before a woman is in the hospital, dying, and that reality is written on a diagnosis sheet, look into her eyes and consider the life she is living and how it might be with less stress.” Women are survivors in so many ways, and these ways should be acknowledged and responded to consistently and conscientiously whether or not a woman adds breast cancer to her identity.
https://time.com/5709290/angelina-jolie-cancer-research-prevention/
Mahmood’s report “Treating Breast Cancer When You Can’t Say ‘Breast'” offers a similar sentiment, when the author notes both the toll of breast cancer in Pakistan and the broader cultural landscape that cannot be ignored when addressing that toll.
The author begins by saying that “Pakistan has the highest rate of breast cancer in Asia. Early detection is essential to treatment but medical experts fear many women are not coming forward due to a culture of modesty.”
https://www.bbc.com/news/world-asia-50103088
Because breasts, and cancer associated with the breasts, are tied with Pakistani women’s sexuality, discourse regarding the disease–and related symptoms, health education efforts and programs–is restricted.
It’s not just men who are avoiding the subject, either. Women fear discovering they have breast cancer—or risking screening that might reveal a positive diagnosis–because detection, at any stage, can have devastating effects apart from the health consequences. Women with breast cancer are frequently perceived as unmarriageable, and their plight considered an inappropriate subject for conversation.
As a 26-year breast cancer survivor, I was encouraged when I came across these two publications on the same day in October. While there’s plenty of pink in the article about breast cancer in Pakistani–the Pink Ribbon Foundation is in full swing in the country, lighting up national attractions like cotton candy on a stick (an effort that I doubt does much to change perceptions of the marriageability of a breast cancer survivor or the expectation that she must marry to be worthy)–neither story waxes over the complexities of talking about breast cancer in context.
It’s not about the disease. It’s about the individual lives the disease touches–how and who we are before and while breast cancer comes knocking.